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<p>INTRODUCTION  ix</p> <p><b>CHAPTER 1. THE EMERGENCE OF MEDICAL INFORMATION IN THE FACE OF PERSONAL AND SOCIETAL ETHICAL CHALLENGES  1</b></p> <p>1.1. An information-consuming society  2</p> <p>1.2. e-Health, m-health, the Quantified Self and Big Data 5</p> <p>1.3. Medical secrecy in the face of the computerization of healthcare data  18</p> <p>1.3.1. Regulatory characteristics of medical secrecy 19</p> <p>1.3.2. Protection of healthcare data 24</p> <p>1.4. Cultural evolution of mentalities surrounding legitimacy of information 28</p> <p>1.5. Processing of personal data in law 30</p> <p>1.5.1. European regulations concerning the processing of medical data 32</p> <p>1.5.2. American legal framework surrounding personal healthcare data 39</p> <p>1.5.3. Laws pertaining to personal data in Asia  42</p> <p><b>CHAPTER 2. ETHICAL MODELING: FROM THE DESIGN TO THE USE OF AN INFORMATION SYSTEM 45</b></p> <p>2.1. Info-ethics: data on practical wisdom 47</p> <p>2.1.1. Epistemological illumination around the pyramid of knowledge 48</p> <p>2.1.2. From data to knowledge through an information system 52</p> <p>2.1.3. Quality and choice of medical information 56</p> <p>2.2. Identification of method used to develop the ethical analysis model 61</p> <p>2.3. Development of the ethical analysis space 68</p> <p>2.4. Presentation of the ethical model  74</p> <p>2.4.1. Ethical cube of an accepted contingency 75</p> <p>2.4.2. Ethical model of information system in the doctor–patient relationship 78</p> <p>2.4.3. Ethical modeling of medical communication 88</p> <p>2.4.4. Process of creation of practical wisdom via neo-Platonic systemic ethical modeling 95</p> <p>2.4.5. Ethical inductive algorithmic governance (;;, G, ;;) 108</p> <p>2.4.6. Toward a selective ranking of medical data 113</p> <p><b>CHAPTER 3. USES OF THIS ETHICAL MODEL 119</b></p> <p>3.1. Implementing the ethical model  119</p> <p>3.1.1. Implementing the model on the major aims of an information system 121</p> <p>3.1.2. Implementation of the model in the general creation of an information system 131</p> <p>3.2. Presentation of the study’s questionnaires  131</p> <p>3.3. Necessary environmental changes for healthcare information systems: recommendations and actions 134</p> <p>3.3.1. From a structural and technological perspective  137</p> <p>3.3.2. From a strategic and methodological perspective 141</p> <p>3.3.3. From an organizational and regulatory perspective  146</p> <p>3.3.4. From a relational and cultural perspective 153</p> <p>3.4. Creating an ethical charter on the “ideal” computational tool for a healthcare establishment 158</p> <p>3.4.1. Missions and areas of action  158</p> <p>3.4.2. Contents  160</p> <p><b>CHAPTER 4. ETHICS-ORIENTED PERSONALIZED MEDICINE 165</b></p> <p>4.1. The evolution of society toward an ethical ideal based on information  166</p> <p>4.2. The doctor–patient–IS triangulation 174</p> <p>4.2.1. Man–machine interface  175</p> <p>4.2.2. Data compression  178</p> <p>4.2.3. Flexibility and technical adaptation to the users  180</p> <p>4.2.4. Shared knowledge engineering  182</p> <p>4.3. Ethical use of an information system in healthcare  184</p> <p>4.4. Ethics-oriented personalized medicine 189</p> <p>4.4.1. Value of management 190</p> <p>4.4.2. Ethical management  191</p> <p>4.5. Tool for the establishment and constant improvement of information systems for ethical practice in hospitals 194</p> <p>4.5.1. Construction of the dashboards  195</p> <p>4.5.2. Methodology of implementation and use 212</p> <p>CONCLUSIONS 221<br /><br />APPENDIX 1 225</p> <p>APPENDIX 2 229</p> <p>APPENDIX 3 233</p> <p>APPENDIX 4 235</p> <p>APPENDIX 5 243</p> <p>APPENDIX 6 245</p> <p>BIBLIOGRAPHY 247</p> <p>INDEX 261</p>

<p>Economist and health manager, <b>Jerome Beranger</b> is a senior consultant and associate researcher (PhD) for Keosys society. His research focuses on ethics and sociology of information systems for e-health, m-health and big data.</p>

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